„Lepiej? Dlaczego nie? Razem możemy więcej”
20-22 Listopada 2008r. Kraków - Wieliczka
Pobierz program w pliku PDF
PROGRAMME
THURSDAY (November 20, 2008) | |
19.00–21.00 | Welcome reception |
Hotel CRACOVIA | |
FRIDAY (November 21, 2008) Salt Mine Wieliczka | |
8.30 | Departure to WIELICZKA |
9.30 | Sightseeing in Salt mine |
11.30 | Coffee break |
| 12.00 | Opening |
12.35 | 3th European CF Day |
12.45 | Lunch |
Standards of care for patients with CF: A European consensus (13.45–15.45) Colombo C.,Cichy W., Dřevínek P., Kačaba I. | |
13.45 | EuroCareCF Workpackage 1. Standards of care for patiens with CF: A European consensus – ECFS document |
14.00 | Implementation of ECFS document in Poland |
14.30 | Implementation of ECFS document in Slovakia |
15.00 | Inhaled antibiotics in Cystic Fibrosis |
15.30 | Discussion |
15.45 | Coffee break |
Standards of care for patients with CF: A European consensus (16.00–17.45) Colombo C., Cichy W., Dřevínek P., Kačaba I. | |
16.00 | Inhaled antibiotic therapy in Cystic Fibrosis |
16.15 | Implementation of ECFS document in Czech rep. |
16.45 | Implementation of ECFS document in Hungary – CF care in Hungary |
17.15 | Social Welfare Services for People with Cystic Fibrosis in Hungary |
17.30 | Discussion |
18.00 | Departure to Krakow |
19.00 | Dinner |
SATURDAY (November 22, 2008) Office of City Krakow, Plac Wszystkich Swiętych 3-4 | |
Genetics of Cystic Fibrosis (9.00–10.45) Zielenski J., Sands D., Mosse N. | |
9.00 | Recent Advances in the Genetics of Cystic Fibrosis |
9.45 | Cystic Fibrosis Molecular Diagnosis – The Principles |
10.00 | CFTR-related diseases rarely associated with defect in CFTR gene |
10.15 | Molecular diagnosis of Cystic Fibrosis in Belarus |
10.30 | Discussion |
10.45 | Coffee break |
Newborn screening of CF (11.15–12.30) Sands D., Skalická V. | |
11.15 | Organisation and methods of CF NBS in Poland (IRT test) |
11.30 | Molecular diagnosis of CFTR gene in neonatal screening for cystic fibrosis |
11.40 | Clinical follow–up of diagnosed infants. |
12.00 | Management of CF children 0-3 years |
12.15 | Discussion |
12.30 | Coffee break |
CF treatment and care (12.45–14.45) Colombo C., Dřevínek P., Gauchez H. | |
12.45 | Adult CF Care |
13.00 | CFRLD – CF Related Liver Disease |
13.20 | Burkholderia cepacia complex and CF |
13.35 | Importance of daily chest physiotherapy for CF patients |
14.05 | Autogenic Drainage – film |
14.15 | Adult with Cystic FibrosisSKORUPA Wojciech, POLAND |
14.30 | Discussion |
14.45 | Lunch |
CF physiotherapy and quality of life (15.45–17.10) Nobili R., Krzyzanowski M., Znotina I. | |
15.45 | Survival of Cystic Fibrosis patients in Latvia in regard to care and treatment |
16.00 | Medical and social aspects of Cystic Fibrosis |
16.15 | CFQ-R cultural adaptation process: a base for quality of life understanding and comparison across the world |
16.30 | „LIFE CLUB CF” |
16.45 | New Therapies – new chance for CF patients |
17.00 | Discussion |
17.10 | Coffee break |
General assembly (17.20–18.00) Wójtowicz P., Štěpánková K., Kačaba I. | |
17.20 | CF Europe |
17.35 | V4 CF Declaration about Standards of care |
17.50 | Discussion |
18.00 | Closing |